MEDIA RELEASE

DOCTOR CALLS ON MINISTER LITTLE TO RELEASE ‘BURIED’ INDEPENDENT REPORT ON PHARMAC

The final report of the Independent Pharmac Review Panel has been sitting with Health Minister Andrew Little since February, with no reason offered for why it has not been released, says Myeloma NZ Chief Executive Dr Ken Romeril.

“Given the damning nature of the Panel’s interim report we can only assume the report contains recommendations that the Minister finds unpalatable.

“Perhaps he’s waiting until the Budget is released, which may well include some more money for Pharmac. We note also that Pharmac meanwhile has made some pre-emptive but largely cosmetic changes to its processes.

“These things might soften reactions to the report’s findings and will of course be welcome, but they will not address the fundamental problems with the Pharmac model and its processes.

“It is galling for the many patients, clinicians and advocacy groups who went to great lengths to make submissions to the Panel and attend its workshops, to find that the report appears to have been buried.

“Submitters overwhelmingly called for fundamental changes to the Pharmac model and processes, which among many other things would require changes to Pharmac’s statutory objectives.  This would include requiring Pharmac to have meaningful consumer input into its medicines funding decisions.

“Meanwhile the Pae Ora Bill is sailing through Parliament with Pharmac completely unchanged.

“It’s ironic that the report is being withheld given that lack of transparency and timeliness were among the many criticisms of Pharmac’s operations.   

“We call on Minister Little to release the report as a matter of urgency,” said Dr Romeril.

ENDS

For further information:

Dr Ken Romeril

Chief Executive, Myeloma NZ

0274 432 624

ken.romeril@icloud.com

Nichola Oakenfull

Patient, and Trustee, Myeloma NZ

027 454 9682

nicholaoakenfull@gmail.com

Joy Wilkie

Patient, and Trustee, Myeloma NZ

027 415 5460

Joy.wilkie@icloud.com

contact@multiplemyeloma.org.nz

www.multiplemyeloma.org.nz

Myeloma New Zealand

PO Box 25162, Wellington 6011

Registered Charity  CC53924

Myeloma New Zealand focuses specifically on multiple myeloma and improving the lives of patients affected by it. Our mission includes campaigning for the best patient care, gaining new, improved treatments, and enabling support for affected families.

Around 360 New Zealanders are diagnosed with this form of blood cancer every year. Myeloma New Zealand provides support and information to help them and their families and loved ones to understand and manage the myeloma ‘journey’ from diagnosis to treatment. Most importantly, we want to help beat this cancer by identifying and supporting research initiatives and achieving access to new medicines that will improve the quality of life of those living with myeloma and extend their lives.